One of the challenges everyone faces is keeping track of health information. This is particularly important for young adults who have OI. Getting ready to go to college, living independently in a new city, and traveling are all occasions when it is critically important to know one’s general and OI history. Often parents know their child’s health history in great detail, but the young adult is not as well informed.
A research study of heart problems in people who have OI is currently recruiting child and adult participants. This trial is being conducted by the Osteogenesis Imperfecta Program at the Kennedy Krieger Institute, Baltimore, MD. For details about the study and a description of who is eligible, please click the link below.