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Welcome to the OI Foundation's Local Network Group Program!

As part of fulfilling its mission, the OI Foundation sponsors a number of different volunteer activities. The goals for all volunteer programs include:

Expanding the OI community
Increasing awareness about OI
Promoting living successfully with OI
Finding a cure.

To reach out to more families in more communities, the OI Foundation has added Local Network Groups to the menu of volunteer projects.

What is an OI Foundation Local Network Group?
A local network group is a group of people, affected by OI, who gather periodically, in their own community, to enjoy each other’s company, share information and encourage each other. This format allows people to create a caring community to support each other and to learn from each other. Each group will have a leader or team of co-leaders who will

v     make the arrangements for the gatherings

v     develop a local contact list

v     keep in touch with the OI Foundation.

Support & Network Group Listing
(by state)

Frequently Asked Questions

Network Group Leader Job Description

Foundation Support

Getting Started

Network Group Leader's Materials

Network groups meet only as frequently as the group wishes to.

Network groups are first of all a community gathering.

Social interaction and fun are important aspects of each gathering.

How is a Local Network Group different from a Support Group?
Local Network Groups are not expected to provide a full range of support services such as information resources, personal support, or regularly scheduled speakers. There is no requirement for meeting more than once a year. Since the emphasis for Local Network Groups is on the local community, there may be more than one group in a state.

The most important job of a Local Network Group
is putting people in touch with each other
and the OI Foundation.