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Support & Network Groups

 

A Local Network Group is a group of people affected by OI, who gather periodically to enjoy each other's company, share information and encourage each other. These get-togethers are first and foremost a community gathering, where social interaction and fun are important aspects of their event.

Support Groups provide a slightly wider range of support services, such as information resources, personal support, and more structured meetings with scheduled speakers.

If you have questions about OI or about the OI Foundation, please contact bonelink@oif.org.

The contact information on this page is intended to help you connect to the OI community in your area.

OI community members gain comfort and inspiration from meeting others who have had similar experiences, and the meetings, get-togethers or phone calls offer advice and support. Adults with OI can share their experiences with younger people, thus helping them to cope. And, at all levels, there is an opportunity for friendship among peers.

If you are interested in joining a nework or support group, contact one of the leaders listed below. Meetings and get-togethers are also posted on the OI Foundation's online calendar.

If there is not a group listed below that is local to you, and you're interested in starting a Network Group to connect with other members of the OI community, please visit the Network Group page(s) or contact the OI Foundation.

State/Area

Name (Email link)

Phone

Type of Group

Alabama Shellie Gruenwald 850-969-0006 Network new
Alaska
Arizona Barbara Hicks 623-628-5499 Network new
Arizona Lauri Alexander 480-833-2112 Support
Northern California

Shirley Roberts
Jane Fowler
Bill Scarberry

408-554-1747
916-459-7176
916-955-0978
Support
Networknew
Network

Southern California

Michelle Hofhine 805-484-8723 Support
Colorado Anne Greenhaw 303-589-8128 Networknew
Delaware Marsha Cooley-Walker 717-361-7266 Support

Florida

Susie Wilson
Gail Bunker
Shellie Gruenwald 
Peter Boes

239-482-6892
813-657-0049
850-969-0006
904-207-9914

Support

Networknew

Georgia Sharon Mutnick
Tina Mabey
770-663-6428
678-398-0933
Networknew
Illinois Jean Grys
Michelle Phillips
309-353-4988
312-451-7453
Support
Indiana Michelle Hoppes 765-553-6600
765-278-1840
Support
Iowa Joan Jacobs
Sara Moffett
641-777-7055
641-590-4923
Support
Networknew
Kentucky Cheryl Pena 859-744-3679 Support
Kansas Susie Gibson 816-650-6344 Support
Massachusetts

Christine Wyman Rossi

508-620-0991

Network new

Michigan

Neeru Sharma
Randy Graise

586-739-4498
248-827-7716

Support

Minnesota

Erin DeBlieck

507-931-3454 Network new
Missouri

Susan Wright

636-931-5607 Support
Nebraska
New Jersey JoAnn Berkenbush
Rosemarie Kasper
201-797-1914
201-489-9232
Support
New York Brett Eisenberg 646-342-0734 Network new
Ohio

Renee Riegel
Cyndi Ashland

937-830-2020
513-467-9588
Support
Ohio (NE)

Mary Ritley
Shelley Keil

440-582-1250

Support
Ohio (Northern)

Les & Erin Szavuly

419-824-3685

Support
Oregon

Pam VanderVeer

503-246-6526

Network new
PA (Pittsburgh)

Chaz Kellem

412-913-6357

Network new
Texas (Central)

Debbie Wiederhold 

512-255-4422

Support
Texas (Dallas)

Elise Russell

817-577-0056

Support

Texas (Houston)

Madison Trafton

832-372-5584

Support

Texas (San Antonio)

Teresa Kutsch

210-561-7272

Support

Utah

Angela Bytheway

801-536-3565

Support

Washington

Karen Braitmayer
Diane Wysocki

206-285-8002
206-713-7208

Support

Wisconsin

Jennifer Reese
Kathy Shine
Daniel Shine

262-646-3887
414-383-4777
414-383-4777

Support


Network groups identified with the newsymbol are in the process of forming. Contact the leader soon to provide your input on meeting times and locations!

Feel free to contact the person listed in your area for more information on meetings, as there may be events scheduled that are not posted on the online calendar. If you are interested in starting a support or network group in your area, please contact the OI Foundation.


CaringBridge
CaringBridge is a free, nonprofit web service that connects family and friends to share information, love and support during a health crisis, treatment and recovery.  Founded in 1997, CaringBridge now connects over 15 million people each year.  The service is always free, private and personalized, and it takes just a few moments to set up your own CaringBridge website.  CaringBridge is a national voluntary health agency and a member of the National Health Council, with the mission to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way.

http://www.caringbridge.org/oif

 

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